End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice
暫譯: 智障與發展障礙者的生命終結：當代議題、挑戰、經驗與實務

Stancliffe, Roger J., Wiese, Michele Y., McCallion, Philip

End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

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商品描述

Chapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices.- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability.- Chapter 3: Suicide and Autism: A Lifespan Perspective.- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities.- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany.- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care.- Chapter 7: Living and Dying Well with Dementia.- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers.- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19.- Chapter 10: Accessible Funerals and People with Intellectual Disability.- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability.- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities.- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability.- Chapter 14: The Process of Dying.- Chapter 15: Use of Do-Not-Resuscitate Orders.- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice.- Chapter 17 End-of Life Resources.

商品描述(中文翻譯)

第1章：死亡、臨終及末期照護政策與實務的現況與新發展。
第2章：智力障礙者的臨終議題經驗。
第3章：自殺與自閉症：生命週期的觀點。
第4章：與智力及發展障礙者進行預立醫療計畫。
第5章：臨終決策：德國居住機構中智力及多重障礙者面臨的挑戰與機會。
第6章：智力障礙者的死亡方式及對優質照護的影響。
第7章：與癡呆症共存與良好死亡。
第8章：建立共享的臨終支持及為安寧/緩和醫療與智力障礙服務提供者進行交叉訓練。
第9章：在臨終時支持智力障礙者：COVID-19期間照護人員的道德困擾。
第10章：可及的葬禮與智力障礙者。
第11章：臨終陪伴者與生活在智力及發展障礙中的人。
第12章：智力障礙兒童的緩和醫療與臨終照護。
第13章：重度智力及多重障礙者的臨終議題與支持需求。
第14章：死亡的過程。
第15章：不施行心肺復甦術命令的使用。
第16章：問題定位：未來臨終研究、政策與實務的議程。
第17章：臨終資源。

作者簡介

Roger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award.

Michele Y. Wiese, PhD MAPS FASID is Adjunct Fellow, School of Psychology, Western Sydney University, Australia. She is also Honorary Senior Research Fellow at the University of Sydney, and Fellow of the Australasian Society of Intellectual Disability. Dr Wiese is consulting editor to three international peerreviewed journals.

Philip McCallion, PhD ACSW FAASWSW FIASSIDD FGSA Director/Professor, School of Social Work, Temple University focuses on caregiver support, dementia, palliative care and service systems. He is cofounder/ co-principal investigator/coapplicant of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging; and National Consultant on Intellectual Disabilities and Dementia, U.S. National Alzheimer's and Dementia Resource Center.

Mary McCarron, PhD MA BNS RNID RGN FTCD is Professor of Ageing and Intellectual Disability at Trinity College University of Dublin, Ireland, and Executive Director of the Trinity Centre for Ageing and Intellectual Disability and the National Intellectual Disability Memory Clinic. She is Principal Investigator of The Intellectual Disability to the Irish Longitudinal Study on Ageing- IDS TILDA, and has led extensive longitudinal research in Ireland and internationally on ageing, dementia and end-of-life issues for people with an intellectual disability.

作者簡介(中文翻譯)

羅傑·J·斯坦克利夫（Roger J. Stancliffe），博士，FAAIDD，FIASSIDD，為澳洲悉尼大學名譽教授。他的研究旨在改善智力障礙者的生活。他共同編輯了一期關於生命末期的特刊，曾擔任《智力與發展障礙期刊》的編輯，並獲得AAIDD研究獎。

米歇爾·Y·維斯（Michele Y. Wiese），博士，MAPS，FASID，為澳洲西悉尼大學心理學院的兼任研究員。她同時也是悉尼大學的榮譽高級研究員，以及澳洲智力障礙學會的會員。維斯博士是三本國際同行評審期刊的顧問編輯。

菲利普·麥卡利昂（Philip McCallion），博士，ACSW，FAASWSW，FIASSIDD，FGSA，為天普大學社會工作學院的主任/教授，專注於照顧者支持、癡呆症、緩和醫療及服務系統。他是愛爾蘭長期老化研究智力障礙補充研究的共同創辦人/共同首席研究員/共同申請人；並擔任美國國家阿茲海默症與癡呆症資源中心的智力障礙與癡呆症國家顧問。

瑪麗·麥卡倫（Mary McCarron），博士，MA，BNS，RNID，RGN，FTCD，為愛爾蘭都柏林三一學院的老年與智力障礙教授，並擔任三一老年與智力障礙中心及國家智力障礙記憶診所的執行主任。她是愛爾蘭長期老化研究智力障礙部分（IDS TILDA）的首席研究員，並在愛爾蘭及國際上領導了有關智力障礙者的老化、癡呆症及生命末期問題的廣泛縱向研究。

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