-
出版商:
Springer
-
出版日期:
2025-11-25
-
售價:
$4,230
-
貴賓價:
9.5 折
$4,019
-
語言:
英文
-
頁數:
130
-
裝訂:
Hardcover - also called cloth, retail trade, or trade
-
ISBN:
3032042763
-
ISBN-13:
9783032042767
-
相關分類:
其他
商品描述
This book provides a comprehensive overview of palliative care digital health by covering current developments, methodology, clinical relevance, research priorities, ethical issues, and policy related to technological innovations for those with serious illness. This type of book does not currently exist in the literature, as previous work primarily focuses on digital health for early identification of disease and facilitating self-care or 'aging in place' practices. This book addresses the lack of focus on digital health for people with palliative care needs. This book has a special focus on the needs of individuals as their health worsens throughout their illness. Consequently, the reader will benefit from this book's focus on the science, methodology, application, and practicality of digital health developments in palliative care. This book explores the barriers that prevent the meaningful use of digital health in palliative care, including expenses, interoperability issues, data privacy and security concerns, lack of effectiveness and equity, and the concern that technology may reduce face-to-face consultations between patients and clinicians. There is an overall lack of consensus about digital health research priorities in palliative care, and a lack of theories about how these technologies might improve care outcomes. Therefore, this book emphasizes the importance of identifying, discussing, and debating how technological innovations can be meaningfully used to ensure that frail people have appropriate access to palliative care services. Consequently, this book begins the conversation about articulating digital health research priorities in palliative care to determine how finite resources should be allocated to a field saturated with rapidly developing innovation.
商品描述(中文翻譯)
本書提供了對緩和醫療數位健康的全面概述，涵蓋當前的發展、方法論、臨床相關性、研究優先事項、倫理問題以及與針對重病患者的技術創新相關的政策。這類書籍在文獻中目前尚不存在，因為以往的研究主要集中在數位健康的早期疾病識別和促進自我照護或「居家安老」實踐上。本書針對需要緩和醫療的人士在數位健康方面的關注不足進行了探討。本書特別關注個體在疾病惡化過程中的需求。因此，讀者將受益於本書對緩和醫療中數位健康發展的科學、方法論、應用及實用性的重點關注。本書探討了阻礙數位健康在緩和醫療中有效使用的障礙，包括費用、互操作性問題、數據隱私和安全問題、缺乏有效性和公平性，以及技術可能減少患者與臨床醫生之間面對面諮詢的擔憂。對於緩和醫療中的數位健康研究優先事項，整體上缺乏共識，並且缺乏關於這些技術如何改善護理結果的理論。因此，本書強調識別、討論和辯論如何有意義地使用技術創新，以確保脆弱人群能夠適當獲得緩和醫療服務的重要性。因此，本書開始了關於在緩和醫療中明確數位健康研究優先事項的對話，以確定如何將有限的資源分配給這一充滿快速發展創新的領域。
作者簡介
Amarachukwu (Amara) Callistus Nwosu Dr. Amara Nwosu is a Senior Clinical Lecturer in Palliative Care at Lancaster University, and Research Lead for Marie Curie North West. Amara is an Honorary Clinical Consultant in Palliative Care at Liverpool University Hospitals NHS Foundation Trust. Amara is an Honorary Senior Clinical Lecturer of the University of Liverpool. Amara's research focuses on digital health in palliative care. In 2023, Amara completed a Churchill Fellowship in the USA and the Netherlands, researching palliative care digital health. Sarah Stanley Sarah Stanley is a research nurse at Marie Curie UK. Sarah is experienced in palliative care nursing and clinical research. In 2018, Sarah received the Marie Curie Susie Wilkinson Award in recognition of her research development. Sarah is undertaking a PhD at Liverpool John Moores University, which explores digital legacy in end-of-life care advance care planning from the perspective of service users, caregivers, bereaved people and healthcare professionals. James Norris James is an 'End of Life Technologist.' He founded the not-for-profit, Digital Legacy Association (DLA) in 2015. James conducts research, training, and develops best practice frameworks in digital assets planning and digital legacy safeguarding at the DLA. James is the founder of MyWishes, a public health intervention, that provides digital approaches to advance care planning and end of life planning. James is based at Harlington Hospice's Inpatient Unit, Michael Sobell House, in North London. Mark Taubert Professor Mark Taubert is a hospital consultant & clinical director at Velindre Cancer Service in Cardiff, Wales. He has academic roles at Cardiff University, is the founder of TalkCPR.com, and chairs the national Future Care Planning strategy group for the National Health Service in Wales. Mark is the Vice-President of the European Association for Palliative Care, a Brussels-based Non-Governmental Organization (NGO). Mark is a fellow of the Learned Society of Wales.
作者簡介(中文翻譯)
阿馬拉丘庫 (Amara) 卡利斯圖斯·恩沃蘇 阿馬拉·恩沃蘇博士是蘭卡斯特大學的高級臨床講師，並擔任瑪麗·居里西北部的研究負責人。阿馬拉是利物浦大學醫院NHS基金會的臨床顧問。阿馬拉是利物浦大學的榮譽高級臨床講師。阿馬拉的研究專注於安寧療護中的數位健康。2023年，阿馬拉在美國和荷蘭完成了邱吉爾獎學金，研究安寧療護的數位健康。 莎拉·史丹利 莎拉·史丹利是瑪麗·居里英國的研究護理師。莎拉在安寧療護護理和臨床研究方面具有豐富的經驗。2018年，莎拉因其研究發展獲得瑪麗·居里蘇西·威爾金森獎。莎拉正在利物浦約翰摩爾斯大學攻讀博士學位，研究從服務使用者、照顧者、喪親者和醫療專業人員的角度探討臨終關懷的數位遺產和預立醫療計畫。 詹姆斯·諾里斯 詹姆斯是一位「臨終技術專家」。他於2015年創立了非營利組織數位遺產協會 (Digital Legacy Association, DLA)。詹姆斯在DLA進行研究、培訓，並開發數位資產規劃和數位遺產保護的最佳實踐框架。詹姆斯是MyWishes的創始人，這是一項公共健康干預，提供數位方法以進行預立醫療計畫和臨終規劃。詹姆斯位於倫敦北部的哈林頓安寧病房，邁克爾·索貝爾之家。 馬克·陶伯特 馬克·陶伯特教授是威爾士卡迪夫的維林德癌症服務的醫院顧問及臨床主任。他在卡迪夫大學擔任學術職位，是TalkCPR.com的創始人，並擔任威爾士國家健康服務的全國未來護理規劃策略小組的主席。馬克是歐洲安寧療護協會的副會長，該協會是一個位於布魯塞爾的非政府組織 (NGO)。馬克是威爾士學會的會員。
