Governance and Management of Medical Scientific Data Sharing and Application: Evidence and Solutions from China
暫譯: 醫療科學數據共享與應用的治理與管理：來自中國的證據與解決方案

這本開放存取的書籍旨在基於中國的證據和經驗，提供醫療數據共享和應用的治理與管理概述。書中介紹了中國醫療數據共享的基本知識和指導方針，以及國際共識，包括醫療數據的識別及其共享、數據共享的機制、醫療倫理和數據倫理、機構管理、隱私政策等。書中討論了醫療大數據和醫學中的人工智慧對法律和治理的挑戰，這些都是公共健康和個人健康的關鍵趨勢。本書建立了一個醫療數據共享和應用治理與管理的學術體系，以及實用的指導。對於醫療機構的研究人員和從業者來說，這本書將提供深刻的見解。

Guan Jian, M.D., is Professor, Peking Union Medical College Hospital, Peking Union Medical College(PUMC) & Chinese Academy of Medical Sciences (CAMS). She is the appointed next chair of Chinese Society of Medical Research Management, the Chinese Medical Association (CMA), and is a member of the CODATA-DETG of the International Science Council (ISC). She serves as the deputy editor-in-chief of Chinese Journal Medical Science Research Management, deputy editor-in-chief of Chinese Medical Ethics. She is an interdisciplinary expert major in big data governance and data ethics in the health field, with twenty years of experience as the executive deputy director of the Clinical Scientific Data Center at the National Population and Health Scientific Data Sharing Service Platform. She has published over 90 articles and contributed to the compilation of nine books.

關鍵醫師（Guan Jian, M.D.）是北京聯合醫學院醫院（Peking Union Medical College Hospital）、北京聯合醫學院（Peking Union Medical College, PUMC）及中國醫學科學院（Chinese Academy of Medical Sciences, CAMS）的教授。她被任命為中國醫學研究管理學會（Chinese Society of Medical Research Management）及中國醫學會（Chinese Medical Association, CMA）的下一任主席，並且是國際科學理事會（International Science Council, ISC）下的CODATA-DETG成員。她擔任《中國醫學科學研究管理》（Chinese Journal Medical Science Research Management）副主編及《中國醫學倫理》（Chinese Medical Ethics）副主編。她是一位跨學科專家，專注於健康領域的大數據治理和數據倫理，擁有二十年的經驗，曾擔任國家人口與健康科學數據共享服務平台臨床科學數據中心的執行副主任。她已發表超過90篇文章，並參與編輯九本書籍。