Bioethics and Disability: Controversies in Genetic Engineering, Euthanasia, and Reproductive Rights
暫譯: 生物倫理與殘障：基因工程、安樂死與生育權的爭議
Shibi Anilkumar, Anu, Veerabathiran, Ramakrishnan
- 出版商: Springer
- 出版日期: 2026-05-05
- 售價: $2,640
- 貴賓價: 9.5 折 $2,508
- 語言: 英文
- 頁數: 155
- 裝訂: Quality Paper - also called trade paper
- ISBN: 9819581966
- ISBN-13: 9789819581962
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商品描述
This book delves into some of the most ethically challenging and socially significant debates of our time. It critically examines how emerging biotechnologies and healthcare policies affect the lives, rights, and representations of individuals with disabilities. Through the lens of bioethics, the book investigates controversial practices such as selective reproduction, prenatal screening, gene editing (including CRISPR), physician-assisted dying, and access to reproductive healthcare. It raises crucial questions about autonomy, personhood, quality of life, and the societal definition of "normalcy," arguing that disability perspectives are essential to shaping ethical frameworks in medicine and science.
This interdisciplinary volume brings together insights from disability studies, philosophy, medical ethics, law, and lived experiences to challenge ableist assumptions often embedded in bioethical discourse. It offers a nuanced, inclusive, and justice-oriented approach to ethical decision-making, advocating for policies and practices that respect human diversity and dignity. Suitable for academics, students, bioethicists, healthcare professionals, and policymakers, this book encourages more profound reflection on the implications of scientific advancement and promotes dialogue on how to ethically navigate the future of healthcare and human rights in ways that include rather than marginalize people with disabilities.商品描述(中文翻譯)
這本書深入探討了當今一些最具倫理挑戰性和社會意義的辯論。它批判性地檢視新興生物技術和醫療政策如何影響殘障人士的生活、權利和表徵。透過生物倫理學的視角，這本書調查了有爭議的實踐，如選擇性生殖、產前篩檢、基因編輯（包括CRISPR）、醫師協助死亡以及生殖健康照護的獲取。它提出了關於自主權、人格、生活品質以及社會對「正常」的定義等重要問題，主張殘障的觀點對於塑造醫學和科學中的倫理框架至關重要。
這本跨學科的著作匯集了殘障研究、哲學、醫學倫理、法律和生活經驗的見解，以挑戰生物倫理話語中常常嵌入的能力主義假設。它提供了一種細緻、包容且以正義為導向的倫理決策方法，倡導尊重人類多樣性和尊嚴的政策和實踐。這本書適合學者、學生、生物倫理學家、醫療專業人員和政策制定者，鼓勵對科學進步的影響進行更深刻的反思，並促進關於如何以倫理方式導航未來醫療和人權的對話，讓殘障人士不再被邊緣化。
作者簡介
Dr.Ramakrishnan V is an Associate Professor in the Department of Genetics at the Faculty of Allied Health Sciences, Chettinad Hospital and Research Institute, a constituent unit of the Chettinad Academy of Research and Education in Kelambakkam. His specialized knowledge plays a crucial role in exploring genetic polymorphisms associated with various metabolic disorders, which are highly relevant to both clinical applications and public health strategies. In the context of gene assessment, evaluating an individual's family health history is essential, as a detailed familial pathological profile helps identify or anticipate hereditary disease trends within or between generations. Over the past few years, genetic testing has gained prominence in diagnosing and managing cardiovascular, metabolic, reproductive, and neurological disorders. Technological innovations such as PCR (polymerase chain reaction), DNA sequencing, multi-omics platforms, and systems biology approaches have advanced the field, leading to the adoption of multigene testing via microarray technologies. These high-throughput panels, encompassing numerous biomarker genes, significantly enhance the early identification of complex genetic conditions.
Anu Shibi Anilkumar is currently serving as a research associate under the mentorship of Dr. Ramakrishnan at the Faculty of Allied Health Sciences, Chettinad Hospital and Research Institute, a constituent unit of the Chettinad Academy of Research and Education.作者簡介(中文翻譯)
Dr. Ramakrishnan V 是位於切提納德醫院與研究所（Chettinad Hospital and Research Institute）健康科學學院（Faculty of Allied Health Sciences）遺傳學系的副教授。他的專業知識在探索與各種代謝疾病相關的遺傳多態性方面發揮了關鍵作用，這對臨床應用和公共衛生策略都具有高度相關性。在基因評估的背景下，評估個人的家庭健康歷史至關重要，因為詳細的家族病理檔案有助於識別或預測世代之間的遺傳疾病趨勢。在過去幾年中，基因檢測在診斷和管理心血管、代謝、生殖和神經系統疾病方面變得越來越重要。技術創新如 PCR（聚合酶鏈反應）、DNA 測序、多組學平台和系統生物學方法推進了該領域，促使通過微陣列技術採用多基因檢測。這些高通量面板涵蓋了眾多生物標記基因，顯著提高了複雜遺傳疾病的早期識別能力。
Anu Shibi Anilkumar 目前在切提納德醫院與研究所健康科學學院擔任研究助理，並在 Dr. Ramakrishnan 的指導下工作。
